Risky Treatment for Cfs and Fibromyalgia

 diseases branch of the CDC, believes that most
People suffering from chronic fatigue syndrome (CFS)patients with CFS and fibromyalgia could benefit from
and fibromyalgia may feel better by boosting levelstaking low-dose hydrocortisone, but he says the
of the stress hormone cortisol with low doses oftreatment is not without risks.
hydrocortisone. According to Dr. Kent Holtorf, theReeves and CDC colleagues recently published a
simple treatment carries significantly less risk andstudy showing that women with CFS symptoms
greater potential for benefit than widely acceptedtend to have lower-than-normal cortisol levels upon
treatments for the two conditions. However, somewaking in the morning, a time when levels typically
CFS and fibromyalgia experts were not so convinced.spike.
Chronic fatigue syndrome is a debilitating disorder of“It does appear that there is something different
uncertain cause which occurs mostly in women thanin HPA axis function in these patients, but that
in men, and in adults between 40 to 50 years old.doesn't necessarily mean that this treatment is the
Fibromyalgia is a disorder characterized by theanswer,” Reeves says.
presence of chronic widespread pain and debilitatingHe cites a 1998 study from the National Institutes of
fatigue.Health examining low-dose hydrocortisone for the
Holtorf believes the majority of CFS and fibromyalgiatreatment of chronic fatigue syndrome.
patients have low levels of the steroid hormoneAlthough the treatment was shown to have some
cortisol due to dysfunction in a brain system thatbenefit, a significant number of patients also exhibited
regulates response to stress, known as thea common side effect seen with higher steroid
hypothalamic-pituitary-adrenal (HPA) axis. The problemdoses, such as adrenal suppression, a reduction in the
is that very sophisticated testing is needed toamount of hormones made by the adrenal glands.
identify this dysfunction.The researchers concluded that the degree of
As a result, while a number of studies have shownadrenal suppression precludes the steroid's practical
lower-than-normal cortisol levels to be common inuse for CFS.
CFS and fibromyalgia patients, many others haveFibromyalgia researcher Dr. Lesley Arnold agrees.
failed to show the association. His review of the“The evidence in favor of using steroids to treat
research is published in the latest issue of the Journalthese conditions just isn't there,” said the
of Chronic Fatigue Syndrome.University of Cincinnati associate professor of
Holtorf routinely treats patients with chronic fatiguepsychiatry. “We just don't have enough
syndrome and fibromyalgia with low doses (5 to 15consistent data about abnormalities in the HPA
milligrams a day) of the steroid hydrocortisone, inaxis.”
addition to other treatments, to boost cortisol levels.Arnold points out that some studies in fibromyalgia
Of 500 consecutive patients treated with the steroidpatients have shown the HPA axis activity to be
at his Torrance, Calif., clinic, Holtorf says 94%increased and some have shown it to be decreased.
showed some improvement and 62% showed“The only thing that has been consistent is that
substantial improvement by the fourth visit.there is usually some kind of abnormality in function.
Dr. William C. Reeves, director of the chronic viral